And it's mission they have embraced with love; and in the memory of their beautiful daughter and sister.

To everyone who knew her, Beccky was bright, bubbly and had big plans for her life ahead - and having been born with kidney disease and enduring two transplants (with both kidneys coming from her parents) nothing was going to get in her way.

More news: Michelle Murphy appointed chief executive at Bendigo Foodshare

But it was the one thing no-one saw coming that finally proved one hurdle too many - the anti-rejection drugs she needed for her new kidney attacked her body, causing lymphoma.

Although she had become unwell in 2015 after joining Kidney Health Australia a year prior, the Johns family and her doctors were stunned to not only discover cancer was behind the setback, her case was so advanced she would be gone barely eight weeks after it was diagnosed.

Now her parents Sue and Paul, and sister Tara, have picked up the KHA cause and vowed to continue her dreams through the Beccky Johns Trust.

The family will help fund an internship program through the organisation, giving one person with kidney disease the chance to live life the way Beccky planned - and did for as long as she could draw breath.

Sue said after starting work with KHA, her daughter had really blossomed.

Other stories:

"I think it was after her second transplant, this one from me, that she was at her happiest, she began to make serious plans to change the world," she said.

"Beccky was just so full of full of life, she was happy and she was able to get her dream job down at Kidney Health Australia. She moved to Melbourne and I guess that's where we saw her turn into the person she had always dreamed of being.

"She finally had her independence and that brought with it her confidence and happiness - and it was all so wonderful to see."

After little more than a year with KHA, Beccky's health began to deteriorate.

"In a weird twist of fate, the anti-rejection medication to keep the transplant; randomly caused her to develop non-Hodgkin lymphoma," Sue added.

For those last few precious weeks of life with their daughter; everything was a blur for the family.

It was, Sue recalled, "so very quick and, even today, it's still a shock."

But even as she slipped away from her family and friends; it was Beccky's determination to make changes that shone through those desperate, darkest times.

After making an impression on Kidney Health Australia in her 12 months, the team contacted the Johns family about creating a trust in their daughter's name.

"I think it was good for the organisation to have someone working for them who had actually used their services," sister Tara explained.

More news: Storms rip through Victoria, bringing much needed rain to heat-affected regions

"She had a radically different perspective and was able to tell them what was worthwhile and what wasn't from her lifetime of personal experience - and pain."

Initially, the trust was created with a focus on developing non-cancer causing medications.

"But in recent years we've had a rethink of that; and because science has come so far, we would need a truckload of money to do deliver meaningful work," Tara said.

"After meetings with Beccky's nephrologist and the former chief executive, we decided to work together on the idea of internships for people with kidney disease."

The internship allows people with the disease to have a year of secure, paid work with the frontline organisation.

"We wanted to be able to give other young people with kidney disease the same joy and satisfaction Beccky got from being part of a workplace instead of being defined by her disease," Sue said.

"There are a lot of employers who are very understanding, but someone such as Kidney Health Australia would know these people need days off if they're unwell or know the toll kidney disease can take on them.

"We want someone to blossom like our Beccky did; and ultimately make her proud."

Kidney Health Australia chief executive Chris Forbes said they were thrilled to be part of an initiative that could help young people with kidney disease get started in their career; and thanked the Johns family for helping to make the program a reality.

Other stories:

"Sue and Paul have always been fantastic supporters and their determination to support other young people has always been, and still is, an inspiration to our team," he said.

"We are very proud to launch this program with them; and equip young people with kidney disease with the skills and experience to take into the world as independent adults."

Mr Forbes said young people with kidney disease and kidney-related conditions faced myriad challenges and interruptions simply as a starting point in their lives and that treatment placed on their progress through their academic and social life.

"On top of navigating the normal pressures of adolescence, these kids and young people are also grappling with a life-threatening and debilitating disease," he said.

Now they are looking for someone else to share in Beccky's legacy - and her dreams.

Our journalists work hard to provide local, up-to-date news to the community. This is how you can access our trusted content: