Shining light on disability

Catherine Boyer's son Edward turns three on Saturday.

But unlike other parents of children his age, Catherine and her husband Gary want nothing more for their son than a supported walking device and a paediatric stroller.

Edward was born with a type of cerebral palsy and his brain age is closer to that of a 13-month-old baby. 

He is yet to speak or walk and his muscles cannot fully support his hips and neck.

With the Federal Budget looming fast and speculation the government may delay the roll-out of the National Disability Insurance Scheme, it's people like Edward who remind people what is at stake.

Mrs Boyer explains what it is like to have a child with a disability.

"It's physically exhausting. It takes a toll on our health as well," she said. 

But having a child with a disability also takes a toll on Mrs Boyer's finances - an area the NDIS could assist with.

To fully accommodate Edward the family needs adjustments in all areas of their home.

Their garden, for instance, is unsuitable for Edward and at present he is unable to play outside.

But the most vital equipment the Boyers need are the walker and stroller. 

Thanks to a Good Samaritan, the family will likely soon have the much longed-for walker.

They were recently told that someone kindly wanted to donate the $4000 to them needed for the vital piece of equipment that will help Edward walk.

But they are still on a waiting list for the paediatric stroller, which costs $11,409 and to have this funded they would have to apply to many agencies; a complex and lengthy process.

Mrs Boyer wants people to keep the national disability scheme in their consciousness, so people like her son can receive the help they need.

It's physically exhausting. It takes a toll on our health as well. - Catherine Boyer

Young Edward's journey is a brave one

For more information on Edward Boyer, go to www.facebook.com/JourneyforEdward or email edwardsjourney@hotmail.com

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