Reporter Kristen Alebakis speaks to Julie Ruff about her fundraising efforts
A FUNDRAISER will be held in Bendigo next month to raise money to help find a cure for Motor Neurone Disease.
A Walk to D-Feet MND will be held at Lake Weeroona with organisers hoping more people than ever before get behind the fundraiser.
Julie Ruff said the fundraiser was close to her heart.
Her husband Ron passed away from the disease three years ago.
Mrs Ruff said the money raised from the event would go towards finding a cure through research.
She said having a loved one live with Motor Neurone Disease can take a toll on the family.
“I was absolutely determined that my husband was going to stay at home,” Mrs Ruff said.
“I first noticed something was wrong when he had a problem with his fingers.
“He couldn’t do up his buttons, then he couldn’t use his legs, he couldn’t walk and then he couldn’t sit, it affected all of his muscles in his back.
“For some it can affect their speech.
“Eventually it goes to the throat and swallowing becomes very difficult.”
With any illness you have some hope that there is a cure, sadly there isn’t with Motor Neurone Disease, but there is hope we can get there one day.
Mrs Ruff said Motor Neurone Disease said she now wanted to spend her time speaking with the community and raising the profile of the disease.
“People may not know about Motor Neurone Disease, they have heard of cancer and all the fundraising that happens for the disease,” she said.
“It is a terminal illness.
“With any illness you have some hope that there is a cure, sadly there isn’t with Motor Neurone Disease, but there is hope we can get there one day.
“We just want exposure and awareness of Motor Neurone as we can because our greatest wish is to find a cure.”
The fundraiser will be held at Lake Weeroona on November 24 between 10am and noon.
Mrs Ruff said as part of the fundraiser, participants will let go balloons.
“It is a nice occasion for us together and celebrate the lives of those who have passed on and those who currently have the disease,” she said.
Registration, which includes a t-shirt, is $30 for adults, $10 for children and a family costs $60.
For more information about the walk visit http://www.mndfundraising.asn.au/event/bendigowalktodfeetmnd2013