BANJO O'Brien had a tough start to life.
He was born at just 24 weeks, and spent the first 140 days of his tiny life in the neonatal intensive care unit.
He has been diagnosed with Quadriplegic Cerebral Palsy and at two and a half he cannot sit, walk, or crawl.
He may be profoundly challenged physically, but his parents Diana and Brad adore their litlle boy and are throwing every treatment at him to see he gets as much out of life as possible.
Increasingly, an extended network of family friends, and strangers touched by his story are also reaching out to help.
Diana's sister Narelle Roberston, who used to run a hair salon in Wall Street Rochester called New Image, has got her old hairdressing team back together.
They are cutting hair at the Elmore Field Days to raise funds to pay for Banjo's considerable medical expenses.
Banjo was unable to come to the event himself because he was in hospital with a chest infection.
Diana said Banjo was a "very happy little boy."
"He's a very cognitive, clever, smiley little boy," she said.
"He smiles at everyone, he laughs a lot, he laughs at things on the TV.
"He knows everything that’s happening. He’s a bit too clever for us at times.
"He can’t sit, walk or crawl yet.
“He hasn’t hit any major milestones yet, but he’s hit lots of little Banjo milestones.
"There’s lot of things he wasn’t doing that he’s now doing, so that’s exciting.”
As well as hair cutting, the tent at site 370 also has lots of activities for kids including a photo booth, coloured hair chalk, face painting, chocolate and nuts.
All proceeds go to the Run Banjo Run campaign.
Diana said the Elmore fund-raiser came about when her sister got her former colleagues together and they all agreed to volunteer their time for the three days.
The Run Banjo Run campaign aims to raise $40,000 to help pay for a multitude of therapies he needs: physiotherapy, speech, occupational therapy, osteotherapy and chiropractic, which can cost $150 an hour.
Banjo also needs a lot of equipment - a stander, a walker and one day a wheelchair.
"It's just constantly looking forward, trying to think about the therapy and equipment he'll need," Diana said.
Diana and Brad are also looking at alternative therapies from overseas.
One therapy the O'Briens are trying is Therasuit therapy - a special kind of physiotherapy which helps strengthen the core muscles.
They are taking Banjo to Melbourne for a three-week intensive Therasuit program soon and they recently returned from Queensland where Banjo underwent a week-long intensive in Vojta therapy.
For more information or to donate visit stand 370 at the Elmore Field Days, go to https://www.facebook.com/SeeBanjoRun or http://www.developingfoundation.org.au/family/banjo
He knows everything that’s happening. He’s a bit too clever for us at times.